Document Type : Articles

Authors

1 Department of Medical Library & Information Science, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences, Tehran, Iran

2 Department of Medical Library and Information Science, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences, Tehran, Iran

3 Center for Healthcare Data Modeling, Departments of Biostatistics and Epidemiology, School of public health, Shahid Sadoughi University of Medical Sciences, Yazd, Iran.

Abstract

Health information-seeking behavior is how to search, find and use disease-related information, information about health-threatening factors and activities related to health promotion. One of the issues affecting people's quality of life is chronic diseases, of which cancer can be mentioned. Cancer incidence is rising over the last years . It cannot be stated for sure that the Fear and concern about cancer which is named carcinophobia,  always cause a lack of follow-up and avoidance of people seeking cancer information; however, considering different time intervals and in different cultures, the same Fear and concern as the stimulus, stimulates or forces the people to track and seek cancer information.The purpose of this analytical survey was clarifying the situation of Health information-seeking behaviour among university students both undergraduate and postgraduate as academic population during cancer outbreak. Also our aim is to  determine the relationship between carcinophobia and information-seeking behavior in this population. Research findings while clarifying the situation of Health information seeking behavior in the academic population, can indicate that carcionphobia causes more information search or is a barrier to information search. The samples of this analytical survey include 243  college students who were selected by cluster-class methodology. The research tool was derived from the Cancer Information Questionnaire Levin (L_CIS). Pearson correlation test was used for the relationship between variables. The results showed that the average total score of students' fears of the disease was 27.20, which was high and the main motive for the search for cancer health information was the protection of personal hygiene(56.4%). " Knowing how to treat cancer (54.7%) and the awareness of new trends in medicine (44.5%) were in the second and third rankings of the purpose and motivation of the search for information. Three components including "Lack of effective communication with Treatment staff  (such as physicians or nurses), "Lack of mastery in searching or finding of health information resources" and "Lack of mastery in the use of print or online health information resources" in average were the most important problems and barriers to obtaining the required information resulting from Fear of cancer. With increasing Fear of cancer, people's willingness to search for information through friends and watching TV shows increased, but the severe, and morbid Fear of cancer reduced the desire of individuals to seek health information.

Keywords

Ackerson, K. & Preston, S. D. (2009). A decision theory perspective on why women do or do not decide to have cancer screening: systematic review. Journal of advanced nursing, 65(6), 1130-1140.
Allen, S. (2013). Development and validation of a survey instrument to assess health information-seeking behaviors among African American young professionals. The University of Alabama at Birmingham.
Austin, L. T., Ahmad, F., McNally, M. J. & Stewart, D. E. (2002). Breast and cervical cancer screening in Hispanic women: a literature review using the health belief model. Women's Health Issues, 12(3), 122-128.
Berrett-Abebe, J., Cadet, T., Nekhlyudov, L., Vitello, J. & Maramaldi, P. (2019). Impact of an interprofessional primary care training on Fear of cancer recurrence on clinicians' knowledge, self-efficacy, anticipated practice behaviors, and attitudes toward survivorship care. Journal of Cancer Education, 34(3), 505-511.
Deng, G. & Cassileth, B. R. (2005). Integrative oncology: complementary therapies for pain, anxiety, and mood disturbance. CA: a cancer journal for clinicians, 55(2), 109-116.
Dickson, A. & Holley, R. P. (2010). Social networking in academic libraries: the possibilities and the concerns. New library world, 111(11/12), 468-479.
Dubayova, T., van Dijk, J.P., Nagyova, I., Rosenberger, J., Havlikova, E., Gdovinova, Z., Middel, B. & Groothoff, J.W. (2010). The impact of the intensity of Fear on patient's delay regarding health care seeking behavior: a systematic review. International journal of public Health, 55(5), 459-468.
Emanuel, A. S., Kiviniemi, M. T., Howell, J. L., Hay, J. L., Waters, E. A., Orom, H. & Shepperd, J. A. (2015). Avoiding cancer risk information. Social Science & Medicine, 147, 113-120.
Fong, K. C. H., Au, C. H., Lam, E. T. H. & Chiu, D. K. (2020). Social network services for academic libraries: A study based on social capital and social proof. The Journal of Academic Librarianship, 46(1), 102091.
Fonnes, T., Telle, I. O., Forsse, D., Falck, R., Trovik, J., Haldorsen, I. S. & Krakstad, C. (2021). Cancer awareness in the general population varies with sex, age and media coverage: A population-based survey with focus on gynecologic cancers. European Journal of Obstetrics & Gynecology and Reproductive Biology, 256, 25-31.
Fourie, I. (2009). Learning from research on the information behaviour of healthcare professionals: a review of the literature 2004–2008 with a focus on emotion. Health Information & Libraries Journal, 26(3), 171-186.
Gray, N. J., Klein, J. D., Noyce, P. R., Sesselberg, T. S. & Cantrill, J. A. (2005). Health information-seeking behaviour in adolescence: the place of the Internet. Social science & medicine, 60(7), 1467-1478.
Gupta, S., Harper, A., Ruan, Y., Barr, R., Frazier, A. L., Ferlay, J., Steliarova-Foucher, E. & Fidler-Benaoudia, M. M. (2020). International trends in the incidence of cancer among adolescents and young adults. JNCI: Journal of the National Cancer Institute112(11), 1105-1117.
Hamzehei, R., Kazerani, M., Shekofteh, M. & Karami, M. (2018). Online health information seeking behavior among Iranian pregnant women: A case study. Library Philosophy and Practice1659.
Kanter, E., Bevan, J. L. & Dorros, S. M. (2019). The use of online support groups to seek information about chronic illness: Applying the theory of motivated information management. Communication Quarterly, 67(1), 100-121.
Kelly, B., Hornik, R., Romantan, A., Schwartz, J. S., Armstrong, K., DeMichele, A., Fishbein, M., Gray, S., Hull, S., Kim, A. & Nagler, R. (2010). Cancer information scanning and seeking in the general population. Journal of health communication, 15(7), 734-753.
Lambert, S. D. & Loiselle, C. G. (2007). Health information—seeking behavior. Qualitative health research17(8), 1006-1019.
Longo, D. R., Schubert, S. L., Wright, B. A., LeMaster, J., Williams, C. D. & Clore, J. N. (2010). Health information seeking, receipt, and use in diabetes self-management. The Annals of Family Medicine, 8(4), 334-340.
 Lucas, H. (2008). Information and communications technology for future health systems in developing countries. Social Science & Medicine, 66(10), 2122-2132.
Manierre, M. J. (2015). Gaps in knowledge: tracking and explaining gender differences in health information seeking. Social Science & Medicine, 128, 151-158.
Mayer, D. K., Terrin, N. C., Kreps, G. L., Menon, U., McCance, K., Parsons, S. K. & Mooney, K. H. (2007). Cancer survivors information seeking behaviors: a comparison of survivors who do and do not seek information about cancer. Patient education and counseling, 65(3), 342-350.
Micheli, A., Coebergh, J. W., Mugno, E., Massimiliani, E., Sant, M., Oberaigner, W., Holub, J., Storm, H.H., Forman, D., Quinn, M. & Aareleid, T. (2003). European health systems and cancer care. Annals of Oncology, 14, v41-v60.
Mitchell, J. L. (1998). Cross‐cultural issues in the disclosure of cancer. Cancer Practice, 6(3), 153-160.
Moser, R. P., McCaul, K., Peters, E., Nelson, W. & Marcus, S. E. (2007). Associations of perceived risk and worry with cancer health-protective actions: data from the Health Information National Trends Survey (HINTS). Journal of health psychology, 12(1), 53-65.
Nel, M. A. & Fourie, I. (2016). Information behavior and expectations of veterinary researchers and their requirements for academic library services. The Journal of Academic Librarianship, 42(1), 44-54.
Nelissen, S., Beullens, K., Lemal, M. & Van den Bulck, J. (2015 a). Fear of cancer is associated with cancer information seeking, scanning and avoiding: a cross‐sectional study among cancer diagnosed and non‐diagnosed individuals. Health Information & Libraries Journal, 32(2), 107-119.
Nelissen, S., Beullens, K., Lemal, M. & Van den Bulck, J. (2015b). Predictors of cancer fear: the association between mass media and Fear of cancer among cancer diagnosed and nondiagnosed individuals. Journal of Cancer Education, 30(1), 68-74.
Nikbakht Nasrabadi, A., Sabzevari, S. & Bonabi, T. N. (2015). Women empowerment through Health information seeking: a qualitative study. International journal of community based nursing and midwifery, 3(2), 105.
Reed, S. C., Bell, J. F., Miglioretti, D. L., Nekhlyudov, L., Fairman, N. & Joseph, J. G. (2020). Relationships between Fear of cancer recurrence and lifestyle factors among cancer survivors. Journal of cancer education35(4).
Reich, M., Gaudron, C. & Penel, N. (2009). When cancerophobia and denial lead to death. Palliative & Supportive Care, 7(2), 253-255.
Rutten, L. J. F., Squiers, L. & Hesse, B. (2006). Cancer-related information seeking: hints from the 2003 Health Information National Trends Survey (HINTS). Journal of Health Communication, 11(s1), 147-156.
Taha, H., Al-Qutob, R., Nyström, L., Wahlström, R. & Berggren, V. (2012). "Voices of Fear and Safety" Women's ambivalence towards breast cancer and breast health: a qualitative study from Jordan. BMC Women's Health, 12(1).
Whitaker, K. L., Cromme, S., Winstanley, K., Renzi, C. & Wardle, J. (2016). Emotional responses to the experience of cancer' alarm'symptoms. Psycho‐Oncology, 25(5), 567-573.